WellnessWeb
Women’s Cancer Network
Yale Cancer Center
Mayo
Clinic Cancer Resource Center
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Cancer and Work
cancerandcareers.org - A
resource for working women with cancer. This site offers useful
information for all people with cancer including a resource database
with hundreds of links.
Cancer Drug
Information
FDA list of approved cancer drugs
Drug Digest - web site operated
by Express Scripts - search tool serves up good information about drugs
and herbs.
What does that drug used for? FDA tool to find
approved uses for cancer drugs.
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Complementary and Alternative
Information
About Herbs, Botanicals and Other Products -
website offered by Memorial Sloan-Kettering Cancer Center. Offers
detailed information about herbs, interactions with chemotherapy agents
and evaluations of alternative or unproved cancer therapies.
National Center for Complementary and Alternative
Medicine - NIH website offers detailed patient information about
CAM.
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Drug Assistance Programs
RxHope.com is a website financially supported
by the Pharmaceutical Research and Manufacturers of America. Consumer
registration required. The website will help you find company, state,
and federal programs that might help you get the cancer drugs you need
either free or at reduced cost.
RxAssist.org is a user friendly website offered
by the Robert Wood Johnson Foundation. A search page allows a visitor to
plug in a brand or generic drug name, or class of drug, to find out what
assistance programs covering that drug are available. Site also offers
links to search engines for state and federal drug assistance
programs.
Patient Advocate Foundation - Co-Pay Relief -
Program provides co-payment assistance for pharmaceutical products to
insured Americans who financially and medically qualify.
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Cancer Information for
Children
Bandaids and Blackboards - when chronic illness goes to
school.
Blood Counts explained
Childhood Cancers Web
Cancer Characters
Captain Chemo's Adventure
Parents Handbook for Children with
Cancer
Teens Living with Cancer
(TLC), - web site provides resources to support teens, their
families and friends. TLC focuses on challenging teen issues, presents
information about cancer and treatment written at teens' level of
interest, provides opportunities to interact with other teens living
with cancer, and offers links to relevant sites. Spanish site available
too.
What
are Cells
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Support for Young Adults with
Cancer
Planet Cancer - website built for
and by young adult cancer survivors. Written and presented with the
edginess many young adults prefer, this site focuses on the issues
particularly relevant to this population.
Pregnant with Cancer - website of
a support group for women diagnosed with cancer while pregnant. Site
offers suggesting reading and regular newsletters.
Young Survival Coalition -
website built for and by young women with breast cancer. The site
offers a well attended message board where posts are answered relatively
promptly.
Caregivers
Caregivers.com online version of the magazine
additional message boards and chat
Eldercare.gov - website operated by the US
Administration on Aging. Offers help in finding care support services
for the elderly.
National Family Caregivers
Association
Strength for Caring is national campaign
launched by the pharmaceutical company Ortho Biotech offering community
based training programs for caregivers of cancer patients. Website
offers a list of programs and online resources.
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Emotional
Support
American Cancer Society Cancer Survivor's
Network - online community that gives voice to the hopes and
fears on cancer survivors and their loved ones. Registered users can
build their own web pages, share stories, and take online quizzes to
help them assess their needs.
ACS' Man to Man - Support group
especially designed for men with cancer.
ACS' Reach to Recovery - Support
for breast cancer survivors.
Bloch Cancer Foundation - Online
form offers to match patients with survivors of the same type of cancer.
Bladder Cancer Advocacy Network - Runs online
support forum once a week and provides information to other support
groups. Also operates in person support groups in select cities.
Cancer Information and Counseling Line -
Telephone counseling line operated by the University of Colorado Cancer
Center.
Facing Our Risk for Cancer
Empowerment - Web site offers online breast cancer support groups,
and, with regional groups around the country, face-to-face support
activities.
Leukemia and Lymphoma Society -
Web site offers online chat support groups during specific hours.
Lung Cancer Alliance - Online
survivors community offers bulletin boards, chats, and blogs.
Planet Cancer - web site focuses on young
adults with cancer.
Pregnant with Cancer - Web site offers method
for contacting other women who have been pregnant with cancer.
SuperSibs - Web site dedicated to
supporting the needs of the siblings of cancer patients. Support
services are available to "shadow survivors" aged 4-18 in the US and
Canada. Referral Form en Espanol also is available on the site.
US Too - Offers emotional support for men with
prostate cancer. Operated over 300 state chapters across the U.S.,
including support for Gay men.
The Wellness Community - Web site offers
information about free support programs conducted in communities around
the nation. Includes online discussion forums, information about
nutrition and spiritual well being.
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Financial and
Legal Assistance
Cancer Financial Assistance Coalition brings
together most of the major cancer organizations to help people who need
it find financial assistance. The web site is easy to navigate. Directs
visitors to mational and local resources depending on the visitor's zip
code. There is also information about how to go about getting
financial assistance.
The Cancer and Careers web site offres a large
database of resources for financial and insurance information.
The Consumers Guide For Getting and
Keeping Health Insurance is produced by the Institute for Health
Care Research and Policy at Georgetown University. The
healthinsuranceinfo.net homepage allows you to download a PDF file or
view state reports online. The PDF download will require Adobe Acrobat
Reader (a free download) on your computer. This is an excellent resource
to help you understand your rights and protections.
govbenefits.gov - Do you qualify for government
assistance? This website, launched by the US Department of Labor, walks
you through some questions and answers and then tells you what you may
qualify for and where to find more information.
HealthCareCoach.com - This website is a project
of the National Health Law Program, a non-profit legal organization
dedicated to informing consumers about their legal rights in the
health care arena.
The Partnership for Prescription Assistance is
a service launched by the Pharmaceutical Research and
Manufacturer's Association (PhRMA) to help match drug assistance
programs with patients in need. The site is free and according to PhRMA,
all information you enter is completely confidential.
Patient Advocate Foundation - Co-Pay Relief -
Program provides co-payment assistance for pharmaceutical products to
insured Americans who financially and medically qualify.
Lab Tests Explained
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Labtestsonline.org - This web site offers
detailed information about hundreds of lab tests - what they are, what
they are used to measure, how they are taken, prep required, etc. You
can also get a rundown of most typical tests prescribed for diagnosing
or managing different cancers. If you don't find a specific test you are
looking for, put the name in the search field on the web site home page.
The web site is the product of a collaboration among professional
societies representing the clinical laboratory community.
The American Society for Clinical Laboratory
Science will explain your lab results for free. This link takes you
to a form on their web site. It is important to read the disclaimer
about the information they provide.
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A word of caution: Many websites offer translation tools to
translate their pages into other languages such as Spanish, French,
German, etc.
Be careful with these tools.
Medical translation requires special attention and expertise. A computer
tool is not likely to do justice to the nuances involved in the
discussion of medical topics. In some cases, the translation could
be incorrect and have implications for your health.
Resources En Español and Other
Languages:
American Cancer
Society: http://www.cancer.org/docroot/ESP/ESP_0.asp
LiveStrong: The Lance Armstrong
Foundation's LiveStrong website in Spanish. Spanish speaking cancer
survivors are able to learn about cancer, access information, download
brochures, view survivor stories and more.
http://www.livestrongespanol.org
National Cancer
Institute: http://www.cancer.gov/espanol/
Medline Plus health
information: http://medlineplus.gov/spanish/
The National Human
Genome Research Institute Spanish language audio glossary of
terms: http://www.genome.gov/sglossary.cfm.
Partnership for Caring
family resource on end of life issues: http://www.caringinfo.org/files/public/eol-aspectos-clinicos.pdf
CancerLinks - Information found on
this site is accessible in 12 languages, from Arabic to
Swedish.
FDA's Oncology
Reference Tools in various languages including Spanish, French,
Dutch, German, Arabic and Japanese. Once you arrive on the site,
click on the language you want.
Health
Information - Translations - website by Ohio State
University Medical Center, and other contributors offers a wide range of
topics related to cancer, treatments, home care, etc in Chinese (2x),
French, English, Hindi, Japanese, Korean, Russian, Somali, Spanish and
Ukrainian. The foreign language documents include english
translation for English speakers working with people who speak or
read the foreign language.
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Pain
American Academy of Pain Management
American Chronic Pain Association - a support
group
American College Physicians 's Guide to Cancer
Pain
American Pain Foundation
American Pain Society
CancerPain.org
City of Hope Pain/Palliative Care Resource
Center
Pain.com
Partners Against Pain - this web site offers
patient and professional information about measuring and managing pain.
Very easy to use with valuable tools.
The National Cancer Institute
The American Cancer Society
University of Pennsylvania Cancer
Center
Never-Ending Squirrel Tale
- web site for parents of children with cancer.
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Side Effects
Chemocare.com is a site sponsored
by OrthoBiotech with content developed by the Cleveland Clinic Cancer
Center. It provides excellent information about coping with side effects
common during chemotherapy treatment.
Support Groups
Gilda’s Club
Cancer Care
Cancer Hope Network - Pairs
cancer patients and/or their families with volunteers who "have been
there." Click on the "Who We Are" link on the home page to learn more
about this free program available to anyone living in the United
States.
Lance Armstrong Foundation
Candlelighters Childhood Cancer Family
Alliance
Teens Living with Cancer (TLC) -
website provides resources to support teens, their families and friends.
TLC focuses on challenging teen issues, presents information about
cancer and treatment written at teens' level of interest, provides
opportunities to interact with other teens living with cancer, and
offers links to relevant sites.
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